Patience Please

• A Dose of Patience, please?

  Written Aug 14, 2012 6:22pm
  Today we struggle with patience. We knew that with so much progress yesterday we would struggle when we didn't see that much every day. Big news today:
  - They have reduced the amount of oxygen to 30% and Logan is no longer on the RAM (CPAP) machine, but just on hi flow oxygen.
  -They started feeding breastmilk to Logan. He will get 5ml through a tube every 3 hours. Although this is encouraging, it made Bill and I realize how long we have to go...5ml is like 5 drops...and he needs full feeds to go home.
  - I was able to attempt to nurse Logan with lacation consultation. He slept the whole time, but we are encouraged he is stable enough to try.
  - He had an OT and PT eval. I know the PT from Washington University (where I went to school). We love friendly faces :)
  - The doctor wants an MRI when he is 10 days old to determine if there was any brain damage when he was born (or in utero). They would typically wait until he was a month old and just do an ultrasound, but the doctor told us we won't be there in a month. That's good news, as it's the first "timeline" we've been given.
  - Logan's resting heart rate is very low. It rests around 70 and they want it at 120. They did 3 EKG's last night and can't find anything wrong with the heart. This is good news, but we would like to know WHY it is low.
  - Logan is still very lethargic. He hasn't opened his eyes yet. He is starting to move more, but we want to see more response. The doctors are monitoring this as well.
  Things to continue praying for:
  - We would like to see more movement and would like to see Logan open his eyes.
  - We would like to see his heartrate a little higher.
  - We need prayers that the MRI next week will show no brain damage.
  - We pray for continued tolerance of feeding, moving the mouth feeding tube to his nose, and then success with nursing.
  -Prayers for transition as Bill and I go from spending 100% of our time leaning on each other to him transitioning to school and coaching. Tomorrow he will do a 1/2 day at school and Thursday we will start full days.
  -Continued prayers for the big kids, as they miss us (and we miss them terribly) and for my parents, who are caring for the kids.
  
  Everything just seems so slow. We were warned that there would be ups and downs and that we need to be patient with each day. However, no matter how many people tell us this, it's still hard. A day seems so long. We know life will never be "normal" again, but we are anxious to find our "new normal" and move forward.
  
  When we were struggling today with patience and understanding, we took a walk through the Children's Garden on the 8th floor. The first tree we saw when we entered was in memory of our dear friends' son, Mark and Leighann Cooper. The tree was planted in honor of Ben Cooper. The tree brought tears to our eyes and tugged at our heart, but the garden itself, brought us a place of peace and solace to pray and relax. Thank you Mark and Leighann for the beautiful donation to help us find peace.
  
  
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  Quick am update

  Written Aug 15, 2012 7:26am
  430am the doctor called for consent to do a blood transfusion due to low platelets.
  
  
  
  I was pumping and reading my devotional when he called.....psalm 9:10...."those who know your name, trust you, o Lord, because you never desert those who seek your help"