God's Mercy

• God's mercy

  Written Aug 24, 2012 6:03pm
  The day has been "status quo". Logan was awake and alert at times and super sleepy other times. He did well with his 11am bottle feed and took 25ml, but then was too tired to attempt his next feeding with me. We are increasing bottle feeds to twice a day to continue to work on suck/swallow and endurance and I am continuing to try to nurse him the other feeds.
  He is starting to develop a little personality and we've discovered that he does NOT like heel pricks for blood draw, removal of tape or stickers from his body, or being completely naked in the cold crib....but then who WOULD like those things?! He LOVES to snuggle and nap with me in the rocking chair, always smiles after he eats by mouth, and likes to be kissed on the forehead...but then who WOULDN'T like those things?!
  The big kids will all be home this weekend and we will spend all our spare time cherishing and enjoying their company. My mom and dad have agreed to go to a wedding and let us have FULL visitation rights, with no supervision, over the weekend. They will return to full "hover-mode" Sunday afternoon! I'm starting to wonder if my mother is doing a better job of mothering than I ever could, and if the kids will argue when we resume full custody again!
  I won't be posting anything over the weekend unless something significant happens. Continued prayer needs are the same: for increased endurance, increased tolerance of feeds by mouth, increased lung healing to decrease the oxygen, and continued patience and energy for Bill and I. I also ask for a blanket prayer for all the NICU babies and their families. We feel so blessed in so many ways and there are some families who are really hurting and suffering here.
  In April, for my birthday, I had the great honor of being invited and escorted by my dear friend, Tracy, to see "Laura's Story" in concert (along with Mandisa and Britt Nicole). This was, and still is, one of my favorite songs. The youtube link is listed below to hear the song in its entirety. I also listed my favorite part of the lyrics.
  http://www.youtube.com/watch?v=1CSVqHcdhXQ
  'Cause what if your blessings come through raindrops
  What if Your healing comes through tears
  What if a thousand sleepless nights are what it takes to know You're near
  What if trials of this life are Your mercies in disguise
  
  What if my greatest disappointments
  Or the aching of this life
  Is the revealing of a greater thirst this world can't satisfy
  What if trials of this life
  The rain, the storms, the hardest nights
  Are your mercies in disguise
  
  **Although I would never willingly "choose" what we have been through and are going through, I can see God's mercies disguised everywhere. And this song is a beautiful reminder of that...
  

  

  Working on his suck reflex with his binky

  
  

  

  Lexi is "not quite sure" of all this

  
  

  

  Lora has all the wires and tubes figured out and just loves to sit and hold her brother!

  
  

  

  
  

  

  Everytime we see TWO eyes open, we try to capture the moment on camera!

  
  

  

  Working on those primitive reflexes....palmar grasp!

  
  

  

   We are working on bottle feeding, in sidelying, with eyes open!  What a champ!